Opening the door to an empty house is a novelty I am not used to. Returning from a work trip, foggy with jet lag but jumped up on caffeine I braced myself for the usual onslaught of a bouncy three year old and the cacophony of kitchen chaos that soundtracks most of my mornings. A click of the lock and a swish of post of the floor – almost silence – and I remember my family are happily scoffing scones in Cornwall. I have 36 hours to myself before they return.
Its a rare thing, time to oneself. I’m lucky enough in that I travel with my job. I have hours up in the air with a kindle full of almost-books to read ahead of publication, and time to revise notes, presentations. None of this requires wet wipes, there are very rarely tantrums, and I get to tune out for as long as we’re cruising at 31,000 feet. But its not strictly relaxing. Low level anxiety that spikes when the turbulence kicks in, a last minute delay which has a knock on effect on the meeting schedule. All inane and completely able to ruin a tightly planned week, so the ticker tape of ‘things-that-must-be-done’ switches from tantrum wrangling, to currency conversion while we’re waiting on those magic words from the pilot – ‘Cabin Crew : 20 minutes to landing’
Away we go, passport control queues, ‘How Long Are You Planning In the United States Ma’am’ and sometimes ‘Welcome Home’ (when I’m in South Africa) but mostly ‘Please Look Directly At the Camera’ and ‘Four Fingers on Your Left Hand Here Please’ – the flurry of coats and bags and belts and restricted areas, visa requirements, taxi lines, hustling bag handlers, checking in, finding wifi and adjusting the body clock. There is an expectation, a calm order in the chaos tightly wound beneath all of the hustle and bustle. I find it very reassuring because compared to my day to day as a parent its predictable. If things go wrong there’s travel agents and insurance and teams to help. Not so at 3am back home in London when fevers top 40 degrees, the calpol is running low and no one can find the asthma pumps
Its been 3 years since we have been lucky enough to find ourselves here, parents. We have found our own ways to manage the night time crisis, tag team the pick ups and drop offs, the day to day hum drum minutiae that comes together to make a family tick, although never like clockwork – and unique in its quiet rhythm. It’s that off beat singularity that surprised me. I had assumed that we are more similar than different, and at the heart of it we probably are. In that we love our kids. We’ll do irrational, crazy stupid things for them, that sleep deprivation fucks us all up, that nothing is as we expected to be. Sometimes its better. And sometimes its not. But we share the first smiles, first steps, first milestones together. We can count on sharing birthday cakes at parties, and moan about nursery fees, and fret about schools, we do this together, at roughly the same time. Comparing notes.
Until we don’t.
We noticed Sam wasn’t picking up language at the same rate as his peers around the 20 month mark. I wrote it off as being a Super Tiger mother who was expecting far too much of her toddler son. When he refused to engage in playgroup activities, preferring to investigate the out of bounds church offices, or to just literally try to climb the walls – I told myself he was probably shy and introverted and just didn’t like new people. And when he bolted off into the sunset without even a backward glance at literally any given opportunity I scoffed and said he was incredibly confident and independent and my weren’t we doing a marvelous job at making him feel secure. He wasn’t making eye contact because he was shy, and therefore not interested in strangers. He was used to us anticipating his needs so didn’t need to speak. He was, just Sam. And all of this is just my very normal parent anxiety
And it is. Until it wasn’t.
We met the Pediatrician who diagnosed significant speech delay with attention/social & communication difficulties. And so began the building of The File (all parents of SEN kids will have one, or a drawer, or an entire wing dedicated to the paperwork). I still can’t read the first report without feeling queasy. Its blunt and medical and objective. Which as a parent you can never be about your kid.
We were referred for everything and introduced to ALL OF THE TEAMS. A few were exhausting – OT (rejected once, appealed, waited a year, jury’s out), and Audiology, (four appointments where he refused to wear headphones, ironically he loves them now). There are others who are nothing short of my personal heroes, our amazing Speech & Language Therapy team, which we would be lost without but who we can NEVER call (its like that episode in SATC… she can reach me, but I can never get her…).
Not forgetting the secret SWAT team that appeared out of nowhere -the brilliant Early Years Inclusivity Team who have coached, cajoled, answered stupid queries and fought battles for us with nurseries and waiting lists and impossible switchboards.
All of this has been happening over the past year, mainly behind the scenes, between the usual routines of work and childcare and college. I have been lucky enough to have had a very supportive & flexible work place and a self employed husband so we can just about keep up with the barrage of admin that comes with each department at each stage. But its taken me a year to get my head around the parenthood that we have found ourselves in. My head is still catching up with the reality of where we are now. A feeling not dissimilar to jet lag.
So where are we?
We’re not sure. Its not where we expected to be. But its not without its charms. Sam adores his speech therapist and is making huge progress every day. He is so damn smart. He loves his nursery and drives them crazy by refusing their lunches and demanding jam sandwiches. He gets all his pronouns wrong which is hilarious and his echolalia makes for interesting listening – it like having a spy at nursery. He’s obsessed with colours, letters, shapes, numbers and fascinated with words – like hes making up for lost time. He wants nothing more than to jump on trampolines and chase his pals while shouting. He loves cuddles and lemon yoghurt, diggers and the 182 bus to Brent Cross. His laugh is magical, and he laughs often.
The CAMHS team assessed him for ASD today and we’ll know more on May 22nd. But whatever the outcome, if this year has taught me anything its that help has come from unexpected places. That there are extraordinary people both health professional and friends who will listen to me cry about ‘labels’ and gently remind me that the more information we have, the more we can share with others to help them understand Sam. That the fear is of the unknown. That people will surprise me. Friends (online and IRL) who will educate me about policy and politics. They will text me their experiences warts and all to give me the heads up on what not to do, and what all the acronyms mean. My mini guide book on WhatsApp. You know who you are. Thank you.
Next up. Choosing a school. The fasten seatbelt signs are now on.